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Dazzle4Rare Co-Host & Message Updates

D4R Updates New Co-Host Messages View online version D4R Updates Dazzle4Rare Co-Host & Message Updates  New Co-host & Message Updates There have been changes to two org messages as well as a new-to-the-Dazzle org. Rare Revolution Magazine RRM has released their new edition of Rare Revolution Magazine so the link in their message has changed as a result. I have updated all of our socials to reflect this change and updated the text file on the  Google Drive. If your organisation is able to update the graphic and message, that’s wonderful but not required. Daisy at RRM has confirmed that using the existing content is fine. You can also share the updated post form any of our socials rather than reschedule as that may be easier. If you choose to do that, I would recommend deleting the scheduled content and reshare from our @dazzle4rare socials. Their amended message is,  “#RARERevolution will #Dazzle4Rare this August, will you join us in helping to give a voice to all RARE conditions? Find us @RareRevolutionM @RareRevolutionMagazine and read our latest edition RARE here https://pos.li/2j7r4e“ Note the shortlink was auto generated by our scheduling service. It works. The official shortlink from RRM is https://bit.ly/RARE-Equitable. ANE International There was an error in last year’s message. The new message reads,  “ANE International raises awareness, supports families & educates on #AcuteNecrotizingEncephalopathy. ANE occurs following viral illness such as flu. Typically it affects healthy kids. Mortality is high & almost all acquired brain injury. Check out our website 4 info. #dazzle4rare”  This new message is found with all the messages on the event pinned post as well as the Google Drive text file.  Assets Folder Social Media Goodies Instagram

International Pain Awareness Month

The month of September has been declared International Pain Awareness Month. This is a time when various organizations work to raise public awareness of issues in the area of pain and pain management.

EOS Awareness Week

Since 2011, ausEE Inc. has been hosting National EOS Awareness Week to raise awareness for eosinophilic gastrointestinal disorders (EGIDs).

Rare Disease Day

Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives.

World Encephalitis Day

World Encephalitis Day is the global awareness day for people who have been directly or indirectly affected by encephalitis.

Founded by The Encephalitis Society in 2014, it is held on February 22 each year and has reached over 200 million people through media features, events and social media.

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