We couldn’t do it without you. Partnerships are everything.
Every August, we #Dazzle4Rare. We post, we like, and we share – all for rare and undiagnosed disease.
It’s projected that 1 in 10 Americans suffer from a rare disease. It’s also projected that there are at least six to seven thousand rare diseases – with more being discovered almost daily. With millions of people worldwide suffering from one (or more) of these diseases, it’s hard for any one rare disease group to spread awareness of their condition. Patients, families, and communities of all sizes affected by rare and undiagnosed disease need more than awareness, we need action.
It’s so hard for all of us to reach the 90% who do not live with a rare disease and especially the condtion(s) we have. Dazzle4Rare represents a diverse group of non-profit communities, patients, and caregivers across genetic and aquired conditions. Banding together means we finally have a voice because we are using a social-strategy to reach each other’s friends and family networks. We are sharing each other’s stories, and in a way, we’re sharing our own – as a largely dismissed demographic of people with diverse needs who are seriously underserved by governements around the world.We have an opportunity to raise a greater awareness. We have an opportunity to be heard, finally. We can join hands and reach around the globe to share our messages with those who would otherwise never hear about many of these conditions. The more we speak up and speak out, the more likely we are to reach those who may need to hear
our message the most.
What’s not to love about that?
If you would like to participate, it’s simple! You can like, share, and retweet any of the posts on our social media pages or those of our growing list
of partners. We also encourage you to share information about rare disease, your own story, or educational links and information for everyone to learn more – all using the hashtag #Dazzle4Rare.
Tag your selfies.
Tell your rare disease story. Share someone else’s rare disease story.
Let’s dazzle the World and show everyone how rare can shine!