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White image with a black logo which shows two hands holding up the Earth with a suble zebra print on the globe. Under the hands it reads "Dazzle4Rare - dazzle4rare.net"
A white text logo with black sans serif text which reads, "Signalise a Dazzle4Rare Podcast"

Dazzle4Rare is a community-led organisation that advocates through collaboration and cooperation. Our mission is to raise awareness through networking to move communities forward and empower organisations, advocates, patients, caregivers, and other stakeholders to reach more people than they typically would through traditional means.

JOIN US TO MAKE A DIFFERENCE!

Get Involved
Photo of a child with a flat, widened nasal bridge. His mother is sitting next to him, smiling. There is a brown photography studio backdrop. The boy is wearing a red shirt and the mother is wearing a white blouse.

Dazzle4Rare 2023

ANYONE CAN PARTICIPATE ON ANY SOCIAL MEDIA PLATFORM USING THE HASHTAG #DAZZLE4RARE OR #DAZZLE4RARE2023.

TAKE IT A STEP FURTHER BY REGISTERING YOUR ORGANISATION, PATIENT ADVOCACY GROUP, OR AS A PATIENT OR SUPPORTER SO THAT OTHERS CAN FIND YOUR MESSAGE AND SHARE IT DURING THE EVENT WEEK.

HELP US TO ENGAGE MORE PEOPLE BY BECOMING A CO-HOST WHICH SHARES THE EVENT WITH YOUR AUDIENCE ON FACEBOOK. AS AN INDIVIDUAL, YOU CAN CLICK “INVITE” AND INVITE FAMILY, FRIENDS, AND OTHERS TO THE EVENT TO HELP BOOST EVENT MESSAGES.

A screenshot of the 2023 Dazzle4Rare Facebook event page. The screenshot shows where co-hosts can find the co-host invitation as an example.
Screenshot of Dazzle4Rare 2023 Event Page showing where co-hosts can find their invitation.

WHEN:
WHERE:

12 AM WHEREVER YOU ARE – 7TH TO 13TH AUGUST, 2023
WHATEVER SOCIAL MEDIA PLATFORM(S) YOU USE

Values

Inclusion isn’t just “nice to have” but essential. It takes all of us working together to create real, lasting change in how the general public recognises and relates to “rare disease.”

We are transparent with our Network, we value empathy, and we strive to innovate.

Approach

We always have and always will work collaboratively with non-profits, patient advocacy groups, the patients and their caregivers, researchers, and industry partners to address the unmet needs and priorities of the rare and associated communities. Everything we do aims to include these groups, help them increase their social reach, and widen our Network for the benefit of everyone involved.

Achievements

From over 100k Twitter impressions to 9.5 million Twitter impressions for the hashtag #Dazzle4Rare, our collective Network has reached hundreds of thousands of people with their critical messages.

Dazzle4Rare was named in the 2019 iPain Magazine Top 100 Influencers. We achieve nothing without collaboration and teamwork. These aren’t Dazzle4Rare achievements, their our Network’s achievements.

Image of 2018 Dazzle4Rare Social Media impressions from Symplur Hashtag Project.

#Dazzle4Rare Symplur Hashtag Impressions

2018

#Dazzle4Rare Symplur Hashtag Impressions

2022

Symplur screenshot of 2022 social media impressions raching 9.4 million Twitter hashtag impressions.

Past Co-Hosts & Supporters

Two line drawn hands lifting up a line drawn image of Earth with a subtle zebra pint across the planet. There are line drawn sparkles around the hands. The image reads, "Dazzle4Rare | dazzle4rare.net"
Two line drawn hands lifting up a line drawn image of Earth with a subtle zebra pint across the planet. There are line drawn sparkles around the hands. The image reads, “Dazzle4Rare | dazzle4rare.net”
Judy the United Advocate - a black and white photo of Judy
Judy, the United Advocate
Dazzle4Rare text-only logo on white background. It reads, "Dazzle4Rare We are Rare Family dazzle4rare.net"

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Socials

Black text on white background. Signalise text-only logo reads, "Signalise a dazzle4rare podcast"