Dazzle4Rare is a community-led organisation that advocates through collaboration and cooperation. Our mission is to raise awareness through networking to move communities forward and empower organisations, advocates, patients, caregivers, and other stakeholders to reach more people than they typically would through traditional means.
JOIN US TO MAKE A DIFFERENCE!
Values
Inclusion isn’t just “nice to have” but essential. It takes all of us working together to create real, lasting change in how the general public recognises and relates to “rare disease.”
We are transparent with our Network, we value empathy, and we strive to innovate.
Approach
We always have and always will work collaboratively with non-profits, patient advocacy groups, the patients and their caregivers, researchers, and industry partners to address the unmet needs and priorities of the rare and associated communities. Everything we do aims to include these groups, help them increase their social reach, and widen our Network for the benefit of everyone involved.
Achievements
From over 100k Twitter impressions to 9.5 million Twitter impressions for the hashtag #Dazzle4Rare, our collective Network has reached hundreds of thousands of people with their critical messages.
Dazzle4Rare was named in the 2019 iPain Magazine Top 100 Influencers. We achieve nothing without collaboration and teamwork. These aren’t Dazzle4Rare achievements, their our Network’s achievements.
Dazzle4Rare 2023
ANYONE CAN PARTICIPATE ON ANY SOCIAL MEDIA PLATFORM USING THE HASHTAG #DAZZLE4RARE OR #DAZZLE4RARE2023.
TAKE IT A STEP FURTHER BY REGISTERING YOUR ORGANISATION, PATIENT ADVOCACY GROUP, OR AS A PATIENT OR SUPPORTER SO THAT OTHERS CAN FIND YOUR MESSAGE AND SHARE IT DURING THE EVENT WEEK.
HELP US TO ENGAGE MORE PEOPLE BY BECOMING A CO-HOST WHICH SHARES THE EVENT WITH YOUR AUDIENCE ON FACEBOOK. AS AN INDIVIDUAL, YOU CAN CLICK “INVITE” AND INVITE FAMILY, FRIENDS, AND OTHERS TO THE EVENT TO HELP BOOST EVENT MESSAGES.
WHEN:
WHERE:
12 AM WHEREVER YOU ARE – 7TH TO 13TH AUGUST, 2023
WHATEVER SOCIAL MEDIA PLATFORM(S) YOU USE
Follow the Hashtag
Facebook Event Page
Follow the Event! Click “Going” to stay up-to-date with the event on Facebook, see and share posts, and interact with others in our Global community!
Follow the Hashtag #Dazzle4Rare
You can follow the hashtag #Dazzle4Rare on whatever social media platform(s) you use! Here are some links to the platforms we’re most active on.
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Join us!
If you want to get your non-profit, patient advocacy, or other message out to more people who care about rare, visit our Registration page to add your details, logo or photo, and the message you’d like others to share during the event!
#Dazzle4Rare Symplur Hashtag Impressions
2018
#Dazzle4Rare Symplur Hashtag Impressions
2022
Past Co-Hosts & Supporters
Judy, the United Advocate 
A photo of Kizzy standing outside with her hands on her hips. She has long dreadlocked hair and is smiling. 
Kerry Wong of Float like a Buttafly and the Sarcoidosis community. 
Chronic pain and rare disease advocate, Barby Ingle seen wearing an orange dress. Barby has blonde hair in the photo and has her hands on her hips. She is smiling. 
Photo: Kimberly Thomas-Tague
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