Category: newsletter

  • Preparing for Dazzle4Rare 2023

    Preparing for Dazzle4Rare 2023

    It’s almost time for Dazzle4Rare (D4R) again in August! Hoping you and your team are doing great! A refresher, D4R is an event where non-profit organizations and condition advocates share each other’s messages on social media. The goal is to reach more people than ever across work, family, and friend networks.

  • Goodbye 2022

    In 2022, many of us had our biggest and most chaotic year ever. Despite the ups and downs, we’ve made it this far together.

  • Dazzle4Rare Co-Host & Message Updates

    D4R Updates New Co-Host Messages View online version D4R Updates Dazzle4Rare Co-Host & Message Updates  New Co-host & Message Updates There have been changes to two org messages as well as a new-to-the-Dazzle org. Rare Revolution Magazine RRM has released their new edition of Rare Revolution Magazine so the link in their message has changed…

A Symplur screenshot showing 2021 hashtag Twitter social media impressions for the event week.

Timeline Impressions

2021

Twitter Timeline Impressions

2022

A screenshot of Dazzle4Rare 2022 Twitter impressions courtesy of Simplur, the healthcare hashtag tracker. The image shows "The numbers" 9.477 million impressions, 3,979 tweets, 239 particpants, 21 average tweets per hour, and 17 average tweets per participant.
Dazzle4Rare text-only logo on white background. It reads, "Dazzle4Rare We are Rare Family dazzle4rare.net"

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Black text on white background. Signalise text-only logo reads, "Signalise a dazzle4rare podcast"