Lee Reavey is the Co-Founder and CEO of the NCBRS Worldwide Foundation. He co-founded NCBRS Parent Support Group in May 2010. Lee’s son received a diagnosis Nicolaides-Baraitser Syndrome as only the seventh known case of NCBRS in the world. At that time, there was very little, if any, information available online.
NCBRS is related to a gene variant of SMARCA2 but more research is needed.
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NCBRS website – https://bit.ly/3S5S8uY
NCBR patient registry – https://bit.ly/3D7FJ5g
Facebook – https://www.facebook.com/ncbrsworldwidefoundation
Twitter – https://twitter.com/ncbrsfoundation
Instagram – https://www.instagram.com/ncbrs/
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