The below Twitter-friendly messages are approved by each organization to be shared on Facebook, Twitter, Instagram, or whatever social platform you use! By sharing these messages, you’re helping each community reach a larger audience than they normally would.

ANE International
ANE International logo

ANE International

ANE International is an international family based initiative that bring awareness to Acute Necrotizing Encephalopathy (ANE) on July 31st every year, provide support to families and education families & support team. Acute Necrotizing Encephalopathy is caused by a viral or bacterial infection that leads to neurological changes and brain injury. #dazzle4rare


Ataxia and Me
Ataxia and Me

Ataxia and Me

Message pending! Check back soon!


Bridge the Gap SYNGAP Foundation logo
Bridge the Gap SYNGAP
Education and Research Foundation logo

Bridge the Gap – Syngap Education & Research Foundation
501c3 Non-Profit Organization

Ok. Let’s #DAZZLE4RARE “21 for 21” Action = Impact that Sparkles all over the world for SYNGAP1! #dazzle4rare #syngap1 #syngap


Cambridge Rare Disease Network logl

Cambridge Rare Disease Network

@camraredisease showcasing the best innovators & initiatives helping those affected by rare to live more connected, independent & healthy lives. Check out #RAREfest20 coming in Nov!! #dazzle4rare


Central Nerve Pain Center logo
Central Nerve Pain Center logo

Central Pain Nerve Centre

We are intractable pain strong and we #dazzle4rare. Thriving, not merely surviving with rare conditions. Visit our website centralpainnervecenter.com.

FibroFlutters logo
FibroFlutters logo

We #dazzle4rare #strutourstripes for #EhlersDanlosSyndromes and support #dazzle4rare2020 #EDS #HypermobilitySpectrumDisorders
COMING SOON #watchthisspace for #ZebraStrutters at @FibroFlutters #RareDiseases #community


Gastroparesis: Fighting for Change logo

Gastroparesis: Fighting for Change

Want 2 make a difference 4 the #Gastroparesis community? Join us on FB https://goo.gl/pNnJmG or see http://curegp.org #Dazzle4Rare


Glitter Queens Global logo
Glitter Queens Global logo

Glitter Queens Global

Glitter Queens Global is a nonprofit advocating through philanthropy. Learn more about what they do – theglitterqueen.com. #dazzle4rare


GYNCSM Community
GYNCSM logo

#GYNCSM

#GYNCSM (Gynecological Cancers Social Media)Let’s #Dazzle4Rare – Learn about some of the rare gynecologic cancers https://gyncsm.blogspot.com/2020/09/september-9-2020-rare-ovarian-and-rare.html #gyncsm


Hashimoto's Encephalopathy SREAT Alliance logo
HESA logo

Hashimoto’s Encephalopathy SREAT Alliance

In August, we #dazzle4rare. Join us! Raising #HEAwareness with our book on Amazon! You can find out book here – https://buff.ly/2hQxpzw.  You can learn more by visiting our website https://buff.ly/2hv2Xe1


iPain Foundation
International Pain Foundation logo

International Pain Foundation

International Pain Foundation is creating synergy through RARE through a special focus on helping those with rare diseases w chronic pain! This is why we support #dazzle4rare!


IWSA Logo
IWSA Logo

The IWSA is dedicated to individuals & families with WAGR syndrome. It’s our desire to celebrate the joy, love and courage of the 450 known WAGR patients worldwide. www.wagr.org #WagrSyndrome #IWSA #Dazzle4Rare

Mal de Debarquement
Mal de Debarquement

Love neuroscience and finding out about more about the human balance system? Love supporting researchers who strive to get treatments out of labs and into clinics? If so, you’ll love this: https://bit.ly/2ORTPRg #MdDSresearch


Pitt Hopkins UK logo
Pitt Hopkins UK logo

Pitt Hopkins UK raises awareness of Pitt-Hopkins syndrome among health professionals, supports families of both adults and children with PTHS while delivering up-to-date information and supporting research into the breathing anomalies and dysfunctional autonomic nervous system. #dazzle4rare


PTEN Hamartoma Tumor Syndrome logo
PTEN Hamartoma Tumor Syndrome logo

PTEN Hamartoma Tumor Syndrome

The PTEN Foundation was founded to find treatments or therapies for PTEN Syndromes. Until then, we will work to teach the world about PTEN; caring for our patients along the way. #dazzle4rare


Rare Disease Connection
Rare Disease Connect logo

Rare Disease Connection

Alone we are rare, together we can accomplish the impossible! This is why we #dazzle4Rare


Rare Disease Ghana Initiative logo
Rare Disease Ghana Initiative logo

Rare Disease Ghana Initiative

Living with undiagnosed, genetic, & rare diseases in most areas of Africa is confronted with negative socio cultural beliefs. Rare Disease Ghana Initiative is helping to break the silence in Ghana. We #Dazzle4Rare Find out more at www.rarediseaseghana.org.


Rare Revolution Magazine logo
Rare Revolution Magazine logo

#RARERevolution will #Dazzle4Rare this August, will you join us in helping to give a voice to all RARE conditions? Find us @RareRevolutionM @RareRevolutionMagazine and read our latest edition RARE Nephrology here https://bit.ly/RARENephrology


RSDA logo
RSDA logo

RSDSA’s mission is to provide support, education, and hope to all affected by the pain and disability of #CRPS/RSD, while they drive research to develop better treatments and a cure. Their team and Warriors always #dazzle4rare. Learn more about them at rsds.org!


Metabolic Support UK logo
Metabolic Support UK logo

This week we’re partaking in #dazzle4rare to help raise awareness of rare conditions, like Inherited Metabolic Disorders. You can learn more about IMDs and what Metabolic Support UK do heB81570re: https://www.metabolicsupportuk.org/ #dazzle4rare


RareShare.org logo
RareShare.org logo

RareShare is a free social platform that connects rare disease patients, advocates, research organizations, and healthcare professionals. We serve hundreds of communities worldwide and are currently 8000 members strong. Find your community: https://rareshare.org/. #dazzle4rare  


Advocates & Allies

Judith Flanagan
Judith Flanagan

United Advocacy Australia – United We Stand Hand to Hand

United Advocacy Australia @unitedadvocacy unites with non-profit organizations around the globe, helping to raise awareness for many conditions. Let’s #Dazzle4Rare!


Click to go directly to #Dazzle4Rare on social media

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